Positions
- Associate Professor
-
Center for Medical Ethics and Health Policy
Baylor College of Medicine
Houston, TX US
Education
- Postdoctoral Fellowship at Baylor College of Medicine
- Houston, Texas United States
- Ethical, Legal, and Social Implications (ELSI) of Genomics
- PhD from Rice University
- Houston, Texas United States
- BA from Clark University
- Worcester, Massachusetts United States
Professional Interests
- Ethical, Legal, and Social Issues (ELSI) in genomics
- Medical Anthropology
- Clinical Integration of Genomic Sequencing
- Newborn Genomics
- Biobanking
- Ethnographic Methods
- Anthropology of Science & Technology
- Qualitative Research Methods
Professional Statement
Dr. Pereira is an associate professor in the Center for Medical Ethics and Health Policy. Her research focuses on social and ethical issues in genomics, with particular emphasis on the impact of integrating genomics into the clinical care of different populations, including newborns, healthy adults, and military personnel. She also has several projects exploring the use of polygenic risk scores across a variety of contexts, including clinical care of cardiology patients, pre-implantation embryo screening, and child and adolescent psychiatry. Additional research interests include issues related to banking, sharing, and research use of human biospecimens. She received her BA in psychology from Clark University, summa cum laude, and her PhD in anthropology with a focus on medical anthropology and anthropology of science from Rice University.Websites
Selected Publications
- Stacey Pereira, Hadley Stevens Smith, Leslie A Frankel, Kurt D Christensen, Rubaiya Islam, Jill Oliver Robinson, Casie A Genetti, Carrie L Blout Zawatsky, Bethany Zettler, Richard B Parad, Susan Waisbren, Alan Beggs, Robert Green, Ingrid Holm, Amy McGuire "Psychosocial Effect of Newborn Genomic Sequencing on Families in the BabySeq ProjectA Randomized Clinical Trial." JAMA Pediatr.. 2021; Pubmed PMID: 34424265
- Pereira S, Hsu R, Islam R, Robinson JO, Ramapriyan R, Sirotich E, Maxwell MD, Majumder M, Blout C, Christensen KD, Mehlman M, Parasidis E, Gardner CL, Killian JM, De Castro M, Green RC, McGuire AL "Airmen and healthcare providers’ attitudes toward the use of genomic sequencing in the US Air Force: Findings from the MilSeq Project." Genetics in Medicine. 2020; Pubmed PMID: 32807975
- Pereira, S, Robinson, JO, Gutierrez, AM, Petersen, D, Hsu, RL, Lee, CH, Schwartz, TS, Holm, IA, Beggs, AH, Green, RC, McGuire, AL, for The BabySeq Project Group "Perceived Benefits, Risks, and Utility of Newborn Genomic Sequencing in the BabySeq Project." Pediatrics. 2019;143(s1):S6-S13.
- Pereira, S, Wright Clayton, E "Commercial Interests, the Technological Imperative, and Advocates: Three Forces Driving Genomic Sequencing in Newborns." Hastings Center Report. 2018;July/August:S43-44. Pubmed PMID: 30133724
- Pereira, S "“DNA is information, and genetics is information technology”: Reconsidering the genetic code." Am J Bioeth. 2019;19(1):75-76.
- Malek, J, Pereira, S, Robinson, JO, Gutierrez, AM, Slashinski, MJ, Parsons, DW, Plon, SE, McGuire, AL "Responsibility, Culpability, and Parental Views on Genomic Testing for Seriously Ill Children." Genetics in Medicine.;(in press)
- Holm, IA, McGuire, AL, Pereira, S, Rehm, H, Green, RC, Beggs, AH, for the BabySeq Project Group "Returning a genomic result for an adult-onset condition to the parents of a newborn: Insights from the BabySeq Project." Pediatrics. 2019;143(s1):S37-S43.
- Shamshirsaz, AA, Sellner, AA, Erfani, H, Aagaard, KM, Nassr, AA, Pereira, S, Belfort, MA, McCullough, LB, Chervenak, FA "An ethical framework for research on maternal-fetal intervention in the presence of maternal HIV or Hepatitis B and C seropositivity." Obstet Gynecol. 2019;133(1):48-52. Pubmed PMID: 30531563
- Johnston, J, Lantos, JD, Goldenberg, A, Chen, F, Parens, E, Koenig, BA, members of the NSIGHT Ethics and Policy Advisory Board "Sequencing Newborns: A Call for Nuanced Use of Genomic Technologies." Hastings Center Report. 2018;July/August:S2-6. Pubmed PMID: 30133723
- Genetti, CA, Schwartz, TS, Robinson, JO, VanNoy, GE, Petersen, D, Pereira, S, Fayer, S, Peoples, HA, Agrawal, PB, Betting WN, Holm, IA, McGuire, AL, Waisbren, SE, Yu, TW, Green, RC, Beggs, AH, Parad, RB "Parental Interest in Genomic Sequencing of Newborns: Enrollment Experience from the BabySeq Project." 2018;[Epub ahead of print]
- Kostick, KM, Brannan, C, Pereira, S, Lázaro-Muñoz, G "Psychiatric genetics researchers’ views on offering return of results to individual participants." Am J Med Genet B Neuropsychiatr Genet. 2018;[Epub ahead of print] Pubmed PMID: 30358063
- Holm, IA, Agrawal, PB, Ceyhan-Birsoy, O, Christensen, KD, Fayer, S, Frankel LA, Genetti, CA, Krier, JB, LaMay, RC, Levy, HL, McGuire, AL, Parad, RB, Park, PJ, Pereira, S, Rehm, HL, Schwartz, TS, Waisbren, SE, Yu, TW, Green, RC, Beggs, AH "The BabySeq Project: Implementing Genomic Sequencing in Newborns." BMC Pediatrics. 2018;18(225) Pubmed PMID: 29986673
- Pereira, S, Robinson, JO, Peoples, HA, Gutierrez, AM, Majumder, MA, McGuire, AM, Rothstein, MA "Do privacy and security regulations need a status update? Perspectives from an intergenerational survey." 2017 Sep;12(9):e0184525. Pubmed PMID: 28926626
- Roberts, JL, Pereira, S, McGuire, AL "Should you profit from your genome?." Nature Biotechnology. 2017;35(1):18-20. Pubmed PMID: 28072771
- Berg, JS et al. "Newborn Sequencing in Genomic Medicine and Public Health." Pediatrics. 2017;139(2):e20162252. Pubmed PMID: 28096516
- Pereira, S, Robinson, JO, McGuire, AL "Return of Individual Genomic Research Results: What do Consent Forms Tell Participants?." European Journal of Human Genetics. 2016;24(11):1524-1529. Pubmed PMID: 27329739
- Frankel, LA, Pereira, S, McGuire, AL "Potential Psychosocial Risks of Sequencing Newborns." Pediatrics. 2016;137(S1):S24-S29. Pubmed PMID: 26729699
- Becnel, LB, Pereira, S, Drummond, JA, Gingras, MC, Covington, KR, Kovar, CL, Doddapaneni, HV, Hu, J, Muzny, D, McGuire, AM, Wheeler, DA, Gibbs, RA "An Open Access Pilot Freely Sharing Cancer Genomic Data from Participants in Texas." Scientific Data. 2016;16(3):160010. Pubmed PMID: 26882539
- McGuire, AL, Moore, Q, Majumder, M, Walkiewicz, M, Eng, C, Belmont, J, Nassef, S, Darilek, S, Rutherford, K, Pereira, S, Scherer, S, Sutton VR, Wolf, D, Gibbs, RA, Kahn, R, Sanchez, LA, on behalf of the Molecular Autopsy Consortium of Houston (MATCH) "The Ethics of Conducting Molecular Autopsies in Cases of Sudden Death in the Young." Genome Research. 2016;26:1165-1169. Pubmed PMID: 27412853
- Pereira, S, Gibbs, RA, McGuire, AL "Open Access Data Sharing in Genomic Research." Genes. 2014;5(3):739-747. Pubmed PMID: 25178093
- Caskey CT, Gonzalez-Garay ML, Pereira S, McGuire AL "Adult Genetic Risk Screening." Annual Review of Medicine. 2014;65:1-17. Pubmed PMID: 24188662
- Gonzalez-Garay ML, McGuire AL, Pereira S, Caskey CT "Personalized genomic disease risk of volunteers." Proc Natl Acad Sci U S A.. 2013;110(42):16957-16962. Pubmed PMID: 24082139
- Pereira S "Motivations and Barriers to Sharing Biological Samples: A Case Study." J Pers Med.. 2013 Jun;32(2):102-110. Pubmed PMID: 25562521
Funding
- Polygenic Risk Scores in Child and Adolescent Psychiatry: Ethical, Clinical, and Legal Implications NIH/NIMH, NHGRI
- Polygenic Embryo Screening: Towards Informed Decision-Making NIH/NHGRI
- Implementation of Whole Genome Sequencing as Screening in a Diverse Cohort of Healthy Infants NIH/NCATS
- Clinical Impact and Perceived Utility of Genomic Cardiovascular Disease Risk Information in a Precision Medicine for Population Health Initiative Baylor College of Medicine
- Trans-Ancestry Genomic Analyses of Obsessive Compulsive Disorder ( NIH
- Engaging Veterans in the Gulf Coast Community to advance Understanding of Military Exposure Research and Action Priorities (U-MERAP) ( NIH/NIEHS
- Experiences and Outcomes in Early Adopters of Predispositional Sequencing ( NIH/NHGRI
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