Rhabdomyosarcoma Web-Based Registry

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About the Study and Registry

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We are inviting families to take part in a research study that will help us better understand the genetic causes of a type of cancer called rhabdomyosarcoma (RMS) or a rhabdomyosarcoma-like (RMS-like) tumor. To do this, we are studying and comparing genes of people with RMS and RMS-like tumors and genes of their parents and siblings.

Information we learn in this study may help to improve screening for RMS and RMS-like tumors in the future. Our overall goal is to learn more about how changes in DNA sequence (called genetic mutations) affect a person’s chance of developing RMS or an RMS-like tumor. This information may one day lead to improved cancer screening tests and maybe prevent cancer from developing in these children.

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Participate!

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We are seeking eligible families to join our study and registry. Go to our Participate information page to see eligibility and participation details. 

Learn More
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Study Team

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Our Genetics of Embryonal and Alveolar Rhabdomyosarcoma Study Research Team has expertise in genetics, pediatric cancer research, and epidemiology. 

Meet Our Team