Psychosocial Considerations in Adults with Brittle Bone Disease
Baylor College of Medicine is conducting this OI Wellbeing Study as a part of the Brittle Bone Disease Consortium which aims to improve the lives of people with Osteogenesis Imperfecta.
This study addresses an under-researched aspect of health critical to the wellbeing of the OI community, namely psychological health. Participants will meet with a researcher over a secure teleconference platform for about 1 hour and complete a series of questionnaires about mental health, physical health, quality of life, social wellbeing, and experience with health care professionals. Participants are compensated $50.
This information may help develop psychological interventions personalized for people with OI. Please share information about this study with any adult with OI that you believe may be interested in participating.
If you have any questions about the study or are considering participating, please email OIWellbeing@bcm.edu or call (713) 798-0117, or see our clinical trials page for more information.